Gonzalo Sièyes Contreras
Gonzalo Sièyes Contreras lost his father on 17th November 2013 to sporadic CJD. Due to his painful loss, he decided to create FEN in the year 2014, becoming the founder and assuming the role of president of this organization; The aim of FEN is to provide support to families affected who struggle in order to overcome prion diseases. In Chile, there was no organization dedicated to prion disease which appears to be coming more and more present in the population.
When Gonzalo’s father presented with the first symptoms, he received much help from leading experts such as Pierluigi Gambetti, Robert Will and Inga Zerr who assisted with advice by responding to correspondence. Gonzalo wants to ensure that other families in Chile are supported and assisted also.