We are very excited to announce the launch of a patient registry for patients, family members, those at risk and those who would like to assist by being a control.
Please watch the video by Eric Minikel and Sonia Valladh announcing the launch of the prion registry at the CJD Foundation conference on 16th July 2017 in Washington DC USA . This is a collaborative initiative supported by the CJD Foundation USA and the CJD International Support Alliance of which Deana Simpson and Suzanne Solvyns are co-chairs.
Announcing prionregistry.org an online portal to connect patients & people at-risk with opportunities to participate in prion research.