Brazil: Family Panel – November 5, 2025

Description: This family panel brings together voices from across the prion disease community to share their lived experiences. Through personal stories, challenges, and moments of hope, families offer unique insight into life with a rare disease. This panel will also include a speech about how families can handle this very difficult time and an enlightening talk about prion disease therapies.

Format and duration: This panel will be in a hybrid format and will especially happen on November 5th.

Target audience: Families affected by prion diseases.

Relevance: The aims of this panel are:

•          Empower families by sharing their journeys

•          Encourage community support and advocacy

•          Help families how to handle this process

•          Inform about prion disease therapies

Restrictions on participation: Participation by invitation. For invitations, please contact Eriton Cunha via email (prionsprotein@gmail.com).