International CJD Awareness Day is November 12th
Be a part of our awareness campaign for social media
#cjdawareness #priondiseaseawareness
Post and share that you are ‘Globally united for prion disease awareness‘ to your local CJD/prion disease community to raise awareness.
- Share our video (posted on Youtube) and create your own. Link to video: ‘Globally united for prion disease’ video
Available to download are:
- Facebook posts and group cover photo
- Instagram posts
- LinkedIn posts and background
- Virtual Background
- A4 poster to print out
- Infographic about prion disease
Click the images below to view and download
International CJD Awareness Day – A4 poster (pdf)
Prion disease infographic (pdf)
Social media graphics:
Below is a link to Erik Minikel’s blog sharing his perspective on the Ionis Community Statement regarding the recruiting pause of the Prion Disease clinical trial.
Link – Why the ION717 trial is paused
from: CureFFI.org
Post by Eric Minikel from Prion Alliance
Link – First details of Ionis trial disclosed
Spanish version link- Primeros detalles revelados sobre el ensayo de Ionis
John Collinge (MRC Prion Unit, University College London, London, UK) discusses a first-in-human treatment programme to give PRN100, an anti-prion-protein monoclonal antibody, to patients with Creutzfeldt–Jakob disease; the report is published in the April issue of The Lancet Neurology.
In Conversation with… John Collinge (link to podcast with listing options)