Prion 2017 held in Edinburgh from 23 – 26th May

By events, news, presentation

We thank Professor Richard Knight and Professor Jean Manson for the opportunity given to the CJD International Support Alliance (CJDISA) to present to the scientific audience on behalf of the patients, families and those at risk of CJD and other prion diseases. Being able to bring the voices and faces of those affected around the world to the 350 researchers and experts attending has become an important part of this annual prion scientific conference.

We would like to thank the many personally affected who contributed to this presentation and acknowledge those whose dedication and passion has led to the development of 15 member associations covering 14 countries who offer support and assistance to all affected by prion disease around the world.

The CJDISA presentation is now posted on the CJDISA website and we will have lay summaries of the scientific presentations that members of our Friends and Advisors have kindly offered to provide to help families to understand the current prion research happening around the world.

Book Release

By news

A new book is being released on March 21st, 2017 by New York Times bestselling author, Gina Kolata.

The book, “Mercies in Disguise: A Story of Hope. A Family’s Genetic Destiny, and The Science That Rescued Them” tells the story of CJDF Board Member Amanda Baxley Kalinsky and her family, the path to diagnosing the disease (GSS) that affects multiple family members, and how Amanda changed the future of prion disease in her family.

You can purchase this book through Amazon Smile using this link: Amazon Smile CJD Foundation DonationAmazon will donate 0.5% of the book price to Creutzfeldt-Jacob Disease Foundation Inc.

Prion 2016 Successful

By events, news, presentation

Prion 2016 Tokyo has successfully ended, see details http://prion2016.org/