We now have permission to provide this video produced by Eric Minikel and Sonia Vallabh about Antisense Oligonucleotide (ASO) Strategy to reduce PrP that was originally shown at the 2018 11th Annual National CJD Conference in Melbourne, Australia.
We now have permission to provide this video produced by Eric Minikel and Sonia Vallabh about Antisense Oligonucleotide (ASO) Strategy to reduce PrP that was originally shown at the 2018 11th Annual National CJD Conference in Melbourne, Australia.
We are very excited to announce the launch of a patient registry for patients, family members, those at risk and those who would like to assist by being a control.
Please watch the video by Eric Minikel and Sonia Valladh announcing the launch of the prion registry at the CJD Foundation conference on 16th July 2017 in Washington DC USA . This is a collaborative initiative supported by the CJD Foundation USA and the CJD International Support Alliance of which Deana Simpson and Suzanne Solvyns are co-chairs.
Announcing prionregistry.org an online portal to connect patients & people at-risk with opportunities to participate in prion research.
This is just brilliant and comes from a lady who is a clinician and also a prion disease researcher and plays the fiddler like you would not believe. Dr. Valerie Sim is also a member of the Friends and Advisors Group of the CJD International Support Alliance and Medical Director of the Canadian CJD Association so is dedicated to assisting patient associations and CJD patients and families. This is the calibre of researchers we are so lucky to know are working hard to find a treatment or cure for this devastating disease called CJD or prion disease.
‘A global collaboration supporting patients, their families and those at increased risk of developing prion disease’.
Presented by Deana Simpson and Suzanne Solvyns, co-chairs, The CJD International Support Alliance (CJDISA).