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Updates on the CJDISA

Latest News

Regeneron Managed Access Program Policy & Clinical Trial site information September 23, 2026
Clinical Trial Update for Prion Diseases, September 2026 September 18, 2026

The CJD International Support Alliance gratefully recognizes Ionis Pharmaceuticals for its generous grant support, which contributes to our ongoing work to enhance awareness, strengthen global support networks, and improve access to information and resources for those impacted by prion diseases.

This website provides information about prion disease, prion disease research, and related subjects. All information posted is for educational and informational purposes and it is not intended as a substitute for advice from a healthcare professional. Please consult with a physician or other healthcare professional regarding any medical or health related diagnosis or treatment options for prion disease.

Reference to any specific clinical trial, entity, or treatment options does not constitute endorsement or recommendation by the CJISA or its members.

While the information on this website has been verified to the best of our ability, we cannot guarantee that there are no errors or mistakes. Should you decide to act upon any information on this website, you do so at your own risk.

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About
- Meet the Team
Global Support
Friends & Advisors
Presentations
Research
- Clinical Trials
News & Events
Contact Us