In 2009 the ‘Friends and Advisors’ Group was formed. This consists of scientists, researchers, neurologists and others who professionally have contributed to, and assisted the work of the CJDISA.  This group of experts and professional are committed to assist the CJDISA with information and support for CJD patients, their families and those at increased risk of CJD.

Australia

Professor Steven Collins

Director ANCJDR, Neurologist, Research Fellow, Medical Director of the CJDSGN.

Professor Simon Hawke

Prion Disease Group, University of Sydney

Jennifer Cooke

Journalist and author

Professor Andrew Hill

Head, Department of Biochemistry and Genetics, Director, RFA Understanding Disease

 

Canada

Professor Neil Cashman

University of British Columbia

Dr Kevin Keough

Executive Director, Alberta Prion Research Institute

Valerie Sim, MD, FRCPC

Neurologist and Assistant Professor, Division of Neurology, University of Alberta
Clinician scientist, Centre for Prions and Protein Folding Diseases, University of Alberta

France

Dr. Jean  Brugere-Picoux

Dr. Jean-Phillippe Brandel

 

Germany

Inga Zerr, MD

 

India

Dr Annu Aggarwal, MD, DNB (Neurology), MRCP (UK)

Alzheimer and Memory Clinic, Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute

Israel

Ruth Gabizon, PhD

Department of Neurology, Hadassah University Hospital

Italy

Professor Maurizio Pocchiari

Research Director, Instituto Superiore di Sanita, Rome, Italy

Professor Fabrizio Tagliavini

Professor Gianluigi Forloni

Associate Professor Gianluigi Zanusso

Neurology and Movement Department, University of Verona, Italy

Mexico

Victor Sanchez, MD

 

Spain

Professor Joaquin Castilla

Ikerbasque Research Professor, CIC bioGUNE – Proteomics unit (Prion lab). Parque tecnológico de Bizkaia. Derio 48160 (Bizkaia), Spain

 

UK

Professor Robert Will, MD

Neurologist, National CJD Surveillance Unit, Edinburgh

Professor Richard Knight FRCP(E)

National CJD Surveillance Unit, Edinburgh
Chair of the CJD Support Network Committee

Margaret Leitch

National Care Co-ordinator UK

Professor Simon Mead

Consultant Neurologist, National Prion Unit, London

USA

Professor Pierluigi Gambetti

Neuropathologist, researcher

Dr. Paul Brown, MD

Neurologist, neuroscientist

Associate Professor Brian Appleby, MD

Co-Director, National Prion Disease Pathology Surveillance Center
Associate Professor, Departments of Neurology, Psychiatry, & Pathology Case Western Reserve University School of Medicine

Dr. Lawrence Schonberger, MD

Neurologist, Assistant Director for Public Health, Centers for Disease Control and Prevention, Atlanta, Georgia

Dr. Ermias Belay, MD

Epidemiologist, Assistant Director for Public Health Centers for Disease Control and Prevention, Atlanta, Georgia

Associate Professor Michael Geschwind

Associate Professor of Neurology at the Memory and Aging Center (MAC), UCSF, San Francisco

Jiri G. Safar, MD

Director, National Prion Disease Pathology Surveillance Center
Associate Professor

Corinne Lasmezas, PhD

Professor, Department of Immunology and Microbial Science, Florida Campus

Eric Minikel

Aspiring prion scientist at Harvard University

Sonia Vallabh

Director at Prion Alliance

Dr Glenn Telling

Director, Professor at Prion Research Center, Colorado State University