In 2009 the ‘Friends and Advisors’ Group was formed. This consists of scientists, researchers, neurologists and others who professionally have contributed to, and assisted the work of the CJDISA. This group of experts and professional are committed to assist the CJDISA with information and support for CJD patients, their families and those at increased risk of CJD.
Australia
Professor Steven Collins
Director ANCJDR, Neurologist, Research Fellow, Medical Director of the CJDSGN.
Professor Simon Hawke
Prion Disease Group, University of Sydney
Jennifer Cooke
Journalist and author
Professor Andrew Hill
Head, Department of Biochemistry and Genetics, Director, RFA Understanding Disease
Belgium
Professor Patrick Cras
Professor of Neurology- Department Chair of Neurology Afdeling Neurologie, Antwerp University Hospital
Canada
Professor Neil Cashman
University of British Columbia
Dr Kevin Keough
Executive Director, Alberta Prion Research Institute
Valerie Sim, MD, FRCPC
Neurologist and Assistant Professor, Division of Neurology, University of Alberta
Clinician scientist, Centre for Prions and Protein Folding Diseases, University of Alberta
Rolande D’Amour, RN, MScN
Rolande D’Amour is a senior nurse consultant at the CJD Surveillance System (CJDSS) in Canada.
Gerard H. Jansen, MD FRCPC
Associate Professor of Neuropathology and Reference Neuropathologist National CJD Laboratory at the University of Ottawa
Medical Consultant to the Canadian CJD Surveillance System
Neuropathologist at the Eastern Ontario Regional Laboratory Association
China
Dr. Qi Shi
Czech Republic
Radoslav Matej, MD, PhD.
Professor of Pathology and Chair, Third Faculty of Medicine, Charles University
Department of Pathology and Molecular Medicine , National Reference Laboratory for Diaognosis of Human TSE/CJD
Robert Rusina MUDr PhD
Head of Neurology, CJD Reference Centre
France
Dr. Jean Brugere-Picoux
Dr. Jean-Phillippe Brandel
Germany
Inga Zerr, MD
Dr. med. Peter Hermann
Department of Neurology, Clinical Dementia Center (KDZ)
National Reference Center for Transmissible Spongiform Encephalopathies (NRZ-TSE)
University Medicine Göttingen
India
Dr Annu Aggarwal, MD, DNB (Neurology), MRCP (UK)
Alzheimer and Memory Clinic, Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute
Israel
Ruth Gabizon, PhD
Department of Neurology, Hadassah University Hospital
Italy
Professor Maurizio Pocchiari
Research Director, Instituto Superiore di Sanita, Rome, Italy
Professor Fabrizio Tagliavini
Professor Gianluigi Forloni
Associate Professor Gianluigi Zanusso
Neurology and Movement Department, University of Verona, Italy
Japan
Hidehiro Mizusawa, MD, Ph
Chair, Prion Disease Surveillance Committee (Japan)
President, National Center of Neurology and Psychiatry
Professor Naomi Hachiya
Department of Neurophysiology, Tokyo Medical University, Tokyo
Japan
Professor Katsumi Doh-ura
Tohoku University School of Medicine
Mexico
Victor Sanchez, MD
Singapore and Malaysia
Dr Adeline Su Lyn Ng, MBChB (Edinburgh), MCRP (United Kingdom)
Consultant- National Neuroscience Institute
Slovakia
Dr Girma Belay
Chair, CJD Reference Centre
Spain
Professor Joaquin Castilla
Ikerbasque Research Professor, CIC bioGUNE – Proteomics unit (Prion lab). Parque tecnológico de Bizkaia. Derio 48160 (Bizkaia), Spain
Jesús R. Requena, Ph.D.
CIMUS Biomedical Research Institute, University of Santiago de Compostela-IDIS
UK
Professor Richard Knight FRCP(E)
National CJD Surveillance Unit, Edinburgh
Chair of the CJD Support Network Committee
Margaret Leitch
National Care Co-ordinator UK
Professor Simon Mead
Consultant Neurologist, National Prion Unit, London
Professor John Collinge
Professor of Neurology and Head of the Department of Neurodegenerative Disease, UCL Institute of Neurology
Director of the UK Medical Research Council’s Prion Unit
Lead of the National Prion Clinic, National Hospital for Neurology and Neurosurgery, London
USA
Professor Pierluigi Gambetti
Neuropathologist, researcher
Dr. Paul Brown, MD
Neurologist, neuroscientist
Associate Professor Brian Appleby, MD
Co-Director, National Prion Disease Pathology Surveillance Center
Associate Professor, Departments of Neurology, Psychiatry, & Pathology Case Western Reserve University School of Medicine
Dr. Lawrence Schonberger, MD
Neurologist, Assistant Director for Public Health, Centers for Disease Control and Prevention, Atlanta, Georgia
Dr. Ermias Belay, MD
Epidemiologist, Assistant Director for Public Health Centers for Disease Control and Prevention, Atlanta, Georgia
Professor Michael Geschwind
Professor of Neurology at the Memory and Aging Center (MAC), UCSF, San Francisco
Corinne Lasmezas, PhD
Professor, Department of Immunology and Microbial Science, Florida Campus
Eric Minikel
Aspiring prion scientist at Harvard University
Sonia Vallabh
Director at Prion Alliance
Dr Glenn Telling
Director, Professor at Prion Research Center, Colorado State University