Friends and Advisors Group

In 2009 the ‘Friends and Advisors’ Group was formed. This consists of scientists, researchers, neurologists and others who professionally have contributed to, and assisted the work of the CJDISA. This group of experts and professional are committed to assist the CJDISA with information and support for CJD patients, their families and those at increased risk of CJD.

Australia

Professor Steven Collins

Director ANCJDR, Neurologist, Research Fellow, Medical Director of the CJDSGN.

Professor Simon Hawke

Prion Disease Group, University of Sydney

Professor Andrew Hill

Head, Department of Biochemistry and Genetics, Director, RFA Understanding Disease

Belgium

Professor Patrick Cras

Professor of Neurology- Department Chair of Neurology Afdeling Neurologie, Antwerp University Hospital

Canada

Professor Neil Cashman

University of British Columbia

Dr Kevin Keough

Executive Director, Alberta Prion Research Institute

Valerie Sim, MD, FRCPC

Neurologist and Assistant Professor, Division of Neurology, University of Alberta
Clinician scientist, Centre for Prions and Protein Folding Diseases, University of Alberta

Rolande D’Amour, RN, MScN

Rolande D’Amour is a senior nurse consultant at the CJD Surveillance System (CJDSS) in Canada.

Gerard H. Jansen, MD FRCPC

Associate Professor of Neuropathology and Reference Neuropathologist National CJD Laboratory at the University of Ottawa
Medical Consultant to the Canadian CJD Surveillance System
Neuropathologist at the Eastern Ontario Regional Laboratory Association

China

Dr. Qi Shi

Czech Republic

Radoslav Matej, MD, PhD.

Professor of Pathology and Chair, Third Faculty of Medicine, Charles University
Department of Pathology and Molecular Medicine , National Reference Laboratory for Diaognosis of Human TSE/CJD

Robert Rusina MUDr PhD

Head of Neurology, CJD Reference Centre

France

Dr. Jean Brugere-Picoux

Dr. Jean-Phillippe Brandel

Germany

Inga Zerr, MD

Dr. med. Peter Hermann

Department of Neurology, Clinical Dementia Center (KDZ)
National Reference Center for Transmissible Spongiform Encephalopathies (NRZ-TSE)
University Medicine Göttingen

India

Dr Annu Aggarwal, MD, DNB (Neurology), MRCP (UK)

Alzheimer and Memory Clinic, Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute

Israel

Ruth Gabizon, PhD

Department of Neurology, Hadassah University Hospital

Prof. Ehud Gazit, Ph.D. FRSC FNASc OSSI

Founding Director, BLAVATNIK CENTER for Drug Discovery
Incumbent, Chair for Biotechnology of Neurodegenerative Diseases
Department of Molecular Microbiology and Biotechnology
Department of Materials Science and Engineering
Sagol School of Neuroscience
Tel Aviv University, Israel

Italy

Professor Maurizio Pocchiari

Research Director, Instituto Superiore di Sanita, Rome, Italy

Professor Fabrizio Tagliavini

Professor Gianluigi Forloni

Associate Professor Gianluigi Zanusso

Neurology and Movement Department, University of Verona, Italy

Japan

Hidehiro Mizusawa, MD, Ph

Chair, Prion Disease Surveillance Committee (Japan)
President, National Center of Neurology and Psychiatry

Professor Naomi Hachiya

Department of Neurophysiology, Tokyo Medical University, Tokyo
Japan

Professor Katsumi Doh-ura

Tohoku University School of Medicine

Netherlands

Evelien Lemstra MD, PhD

Neurologist, Alzheimer Center Amsterdam and Department of Neurology, Amsterdam University Medical Centers.
Member of the National CJD Working group in the Netherlands.
President of the Working group for cognitive neurology within the Dutch Neurology Association.

New Zealand

Dr Nick Cutfield

Clinical Senior Lecturer in the Department of Medicine at the University of Otago, and
Consultant Neurologist and Clinical Lead at Dunedin.
Director, National CJD Registry, New Zealand.

Mexico

Victor Sanchez, MD

Pakistan

Associate Professor Saima Zafar (PhD)

National University of Sciences and Technology, Islamabad, Pakistan

Singapore and Malaysia

Dr Adeline Su Lyn Ng, MBChB (Edinburgh), MCRP (United Kingdom)

Consultant- National Neuroscience Institute

Slovakia

Dr Girma Belay

Chair, CJD Reference Centre

Spain

Professor Joaquin Castilla

Ikerbasque Research Professor, CIC bioGUNE – Proteomics unit (Prion lab). Parque tecnológico de Bizkaia. Derio 48160 (Bizkaia), Spain

Jesús R. Requena, Ph.D.

CIMUS Biomedical Research Institute, University of Santiago de Compostela-IDIS

Taiwan

Professor Shun-Sheng Chen

Emeritus Voice-Superintendent & Professor of Neurology
Kaohsiung Medical Center, Chang Gung Memorial Hospital
Kaohsiung Taiwan

Professor Ming-Jang Chiu

Director, Department of Neurology, NTU Hospital Taiwan

UK

Professor Richard Knight FRCP(E)

National CJD Surveillance Unit, Edinburgh
Chair of the CJD Support Network Committee

Margaret Leitch

National Care Co-ordinator UK

Professor Simon Mead

Consultant Neurologist, National Prion Unit, London

Professor John Collinge

Professor of Neurology and Head of the Department of Neurodegenerative Disease, UCL Institute of Neurology
Director of the UK Medical Research Council’s Prion Unit
Lead of the National Prion Clinic, National Hospital for Neurology and Neurosurgery, London

USA

Professor Pierluigi Gambetti

Neuropathologist, researcher

Dr. Paul Brown, MD

Neurologist, neuroscientist

Associate Professor Brian Appleby, MD

Co-Director, National Prion Disease Pathology Surveillance Center
Associate Professor, Departments of Neurology, Psychiatry, & Pathology Case Western Reserve University School of Medicine

Dr. Lawrence Schonberger, MD

Neurologist, Assistant Director for Public Health, Centers for Disease Control and Prevention, Atlanta, Georgia

Dr Glenn Telling

Director, Professor at Prion Research Center, Colorado State University

The CJDISA Friends and Advisors Group