AUSTRALIA
Professor Steven Collins
Neurologist – Scientist
Director, Australian National Creutzfeldt-Jakob Disease Registry (ANCJDR)
Professor/Senior Principal Research Fellow in the Department of Medicine, the University of Melbourne
Clinical Lead, Dementia Mission and Member, Clinical Governance Committee, The Florey
Head, Mitochondrial & Autoimmune Neurological Disorders diagnostic laboratory, Department of Clinical Neurosciences and Neurological Research, St Vincent’s Hospital, Melbourne
Medical Director of the CJDSGN
Professor Simon Hawke
Prion Disease Group, University of Sydney
Jennifer Cooke
Journalist and author
Professor Andrew Hill
Professor and Deputy Vice-Chancellor Research & Impact, Victoria University, Melbourne, Australia
Dr Debra Scott
Palliative Care and Patient Care advisor to the CJD Support Group Network
BELGIUM
Professor Patrick Cras
Professor of Neurology- Department Chair of Neurology Afdeling Neurologie, Antwerp University Hospital
CANADA
Dr. Neil Cashman
Professor of Medicine (Neurology) at the University of British Columbia
Co-founder and CSO of ProMIS Neuroscience
Dr Kevin Keough
Professor Emeritus of Biochemistry at Memorial University of Newfoundland and Principal of Kevin Keough Consulting Incorporated
Dr. Valerie Sim, MD, FRCPC
Neurologist and Associate Professor, Division of Neurology, University of Alberta
Prion scientist, Centre for Prions and Protein Folding Diseases, University of Alberta
Gerard H. Jansen, MD FRCPC
Associate Professor of Neuropathology and Reference Neuropathologist National CJD Laboratory at the University of Ottawa
Neuropathologist at the Eastern Ontario Regional Laboratory Association
CHINA
Dr. Qi Shi, MD, PhD, Professor of Virology
Director, CJD Surveillance Center, Department of Prion Disease, Institute for Viral Disease Control and Prevention (IVDC), China CDC
CZECH REPUBLIC
Radoslav Matej, MD, PhD.
Professor of Pathology and Chair, Third Faculty of Medicine, Charles University
Department of Pathology and Molecular Medicine , National Reference Laboratory for Diaognosis of Human TSE/CJD
Robert Rusina MUDr PhD
Head of Neurology, CJD Reference Centre
FRANCE
Dr. Jean-Phillippe Brandel
Cellule Nationale de référence des maladies de Creutzfeldt-Jakob
Groupe Hospitalier Pitié-Salpêtrière
GERMANY
Professor Dr. Inga Zerr, MD
German National Reference Center for Transmissible Spongiform Encephalopathies (NRZ-TSE)
Department of Neurology
University Medical Center Göttingen
Dr. Peter Hermann, MD
German National Reference Center for Transmissible Spongiform Encephalopathies (NRZ-TSE)
Department of Neurology
University Medical Center Göttingen
GREECE
Sokratis G. Papageorgiou
Assoc. Prof of Neurology and Neuropsychology
Medical School, National and Kapodistrian University of Athens
1st University Department of Neurology
“AEGINITEIO” University Hospital
INDIA
Dr Annu Aggarwal, MD, DNB (Neurology), MRCP (UK)
Alzheimer and Memory Clinic, Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute
ISRAEL
Ruth Gabizon, PhD
Department of Neurology, Hadassah University Hospital
ITALY
Professor Fabrizio Tagliavini
Professor Gianluigi Forloni
Associate Professor Gianluigi Zanusso
Neurology and Movement Department, University of Verona, Italy
JAPAN
Hidehiro Mizusawa, MD, Phd
President’s advisor, President Emeritus, National Center of Neurology and Psychiatry
Specially-appointed Professor, Professor Emeritus, Tokyo Medical and Dental University
Professor Katsumi Doh-ura
Tohoku University School of Medicine
NETHERLANDS
Evelien Lemstra MD, PhD
Neurologist, Alzheimer Center Amsterdam and Department of Neurology, Amsterdam University Medical Centers.
Member of the National CJD Working group in the Netherlands.
President of the Working group for cognitive neurology within the Dutch Neurology Association.
NEW ZEALAND
Dr Nick Cutfield
Clinical Senior Lecturer in the Department of Medicine at the University of Otago, and
Consultant Neurologist and Clinical Lead at Dunedin.
Director, National CJD Registry, New Zealand.
Dr Andrew Chancellor BHB, MBChB, MD, FRACP, FRCP
MEXICO
PAKISTAN
Associate Professor Saima Zafar (PhD)
National University of Sciences and Technology, Islamabad, Pakistan
SINGAPORE & MALAYSIA
Associate Professor Adeline Ng, MBChB (Edinburgh), MCRP (United Kingdom)
Senior Consultant – National Neuroscience Institute
SLOVAKIA
Dr Girma Belay
Chair, CJD Reference Centre
SPAIN
Professor Joaquin Castilla
Ikerbasque Research Professor, CIC bioGUNE – Proteomics unit (Prion lab). Parque tecnológico de Bizkaia. Derio, Spain
Jesús R. Requena, Ph.D.
CIMUS Biomedical Research Institute, University of Santiago de Compostela-IDIS
TAIWAN
Professor Shun-Sheng Chen
Emeritus Voice-Superintendent & Professor of Neurology
Kaohsiung Medical Center, Chang Gung Memorial Hospital
Kaohsiung Taiwan
Professor Ming-Jang Chiu
Director, Department of Neurology, NTU Hospital Taiwan
UNITED KINGDOM
Professor Richard Knight FRCP(E)
National CJD Surveillance Unit, Edinburgh
Chair of the CJD Support Network Committee
Margaret Leitch
National Care Co-ordinator UK
Professor Simon Mead
Consultant Neurologist and Clinical Lead of the NHS National Prion Clinic
Professor of Neurology and Deputy Director of the MRC Prion Unit at UCL
UK CJD Support Network Committee Member
Professor John Collinge
Professor of Neurology and Head of the Department of Neurodegenerative Disease, UCL Institute of Neurology
Director of the UK Medical Research Council’s Prion Unit
Director of the NHS National Prion Clinic, National Hospital for Neurology and Neurosurgery, London
UNITED STATES OF AMERICA
Dr. Paul Brown, MD
Neurologist, neuroscientist
Professor Brian Appleby, MD
Director, National Prion Disease Pathology Surveillance Center
Professor, Departments of Neurology, Psychiatry, & Pathology Case Western Reserve University School of Medicine
Dr. Lawrence B. Schonberger, MD, MPH
Distinguished consultant and epidemiologist
Assistant Director for Public Health & Chief, Prion and Public Health Office, Division of High Consequence Pathogens & Pathology, NCEZID, CDC, Atlanta, GA
Professor Michael Geschwind
Professor of Neurology at the Memory and Aging Center (MAC), UCSF, San Francisco
Corinne Lasmezas, DVM, PhD
Professor, UF Scripps, Florida, USA
CEO, Vova Ida Therapeutics, Inc. (VIT)
Eric Minikel
Senior Group Leader, Broad Institute of MIT and Harvard
Sonia Vallabh
Senior Group Leader, Broad Institute of MIT and Harvard
Dr Glenn Telling
Director, Professor at Prion Research Center, Colorado State University
Byron Caughey, PhD
Senior Investigator and Chief of the TSE/Prion Biochemistry Section of the Laboratory of Neurological Infections and Immunity, Rocky Mountain Laboratories (RML)
ACKNOWLEDGEMENTS
The CJDISA acknowledges the commitment and dedication of the following members of the F & A group who have retired or are no longer working in the field of prion disease.
Professor Robert Will – UK
Professor Pierluigi Gambetti – USA
Professor Mauritizio Pocchiari – Italy
Dr Ermias Belay – USA
Rolande D’Amour, RN, MScN – CANADA
Our thoughts are with the family of Associate Professor Naomi Hachiya from Japan who passed away 
5/2/23 after a short battle with cancer. Naomi was very dedicated to her research work in the field of prion disease, she was a member of the Asian Pacific Prion Research Association and hosted this event in 2018. Naomi continued her dedication as director of the New Step Research Centre in Japan.