‘A global collaboration supporting patients, their families and those at increased risk of developing prion disease’.
Presented by Deana Simpson and Suzanne Solvyns, co-chairs, The CJD International Support Alliance (CJDISA).
A new book is being released on March 21st, 2017 by New York Times bestselling author, Gina Kolata.
The book, “Mercies in Disguise: A Story of Hope. A Family’s Genetic Destiny, and The Science That Rescued Them” tells the story of CJDF Board Member Amanda Baxley Kalinsky and her family, the path to diagnosing the disease (GSS) that affects multiple family members, and how Amanda changed the future of prion disease in her family.
You can purchase this book through Amazon Smile using this link: Amazon Smile CJD Foundation Donation. Amazon will donate 0.5% of the book price to Creutzfeldt-Jacob Disease Foundation Inc.
On July 8-10, 2016, the CJD Foundation and the National Prion Disease Pathology Surveillance Center will host the 2016 CJD Foundation Family Conference at the Washington Court Hotel, Washington, DC. The conference will feature presentations by grant recipients and other researchers, family workshops, roundtable discussions, and updates from the CDC and NPDPSC.
For information, visit www.CJDFoundation.org or go to:
2016 CJD Foundation Family Conference Information
2016 CJD Foundation Family Conference Invitation
2016 CJD Foundation Family Conference Registration Form