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Book Release

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A new book is being released on March 21st, 2017 by New York Times bestselling author, Gina Kolata.

The book, “Mercies in Disguise: A Story of Hope. A Family’s Genetic Destiny, and The Science That Rescued Them” tells the story of CJDF Board Member Amanda Baxley Kalinsky and her family, the path to diagnosing the disease (GSS) that affects multiple family members, and how Amanda changed the future of prion disease in her family.

You can purchase this book through Amazon Smile using this link: Amazon Smile CJD Foundation DonationAmazon will donate 0.5% of the book price to Creutzfeldt-Jacob Disease Foundation Inc.

Prion 2016 Successful

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Prion 2016 Tokyo has successfully ended, see details


Coming Events

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On July 8-10, 2016, the CJD Foundation and the National Prion Disease Pathology Surveillance Center will host the 2016 CJD Foundation Family Conference at the Washington Court Hotel, Washington, DC. The conference will feature presentations by grant recipients and other researchers, family workshops, roundtable discussions, and updates from the CDC and NPDPSC.

For information, visit or go to:

2016 CJD Foundation Family Conference Information

2016 CJD Foundation Family Conference Invitation

2016 CJD Foundation Family Conference Registration Form