International CJD Awareness Day is November 12th
Be a part of our awareness campaign for social media
#cjdawareness #priondiseaseawareness
Post and share that you are ‘Globally united for prion disease awareness‘ to your local CJD/prion disease community to raise awareness.
- Share our video (posted on Youtube) and create your own. Link to video: ‘Globally united for prion disease’ video
Available to download are:
- Facebook posts and group cover photo
- Instagram posts
- LinkedIn posts and background
- Virtual Background
- A4 poster to print out
- Infographic about prion disease
Click the images below to view and download
International CJD Awareness Day – A4 poster (pdf)
Prion disease infographic (pdf)
Social media graphics:
From Joaquín Castilla-
“It is a pleasure to inform you that we have successfully celebrated the II Spanish Family meeting for the CJD/FFI affected families. It has been very emotive and exciting according to all the compliments received. The meeting came out on three of the best television networks in the country! This is great for our Spanish Association!
We met 102 persons (see in Spanish the program: Spanish Association Conference Program).”
We thank Professor Richard Knight and Professor Jean Manson for the opportunity given to the CJD International Support Alliance (CJDISA) to present to the scientific audience on behalf of the patients, families and those at risk of CJD and other prion diseases. Being able to bring the voices and faces of those affected around the world to the 350 researchers and experts attending has become an important part of this annual prion scientific conference.
We would like to thank the many personally affected who contributed to this presentation and acknowledge those whose dedication and passion has led to the development of 15 member associations covering 14 countries who offer support and assistance to all affected by prion disease around the world.
The CJDISA presentation is now posted on the CJDISA website and we will have lay summaries of the scientific presentations that members of our Friends and Advisors have kindly offered to provide to help families to understand the current prion research happening around the world.
- CJDISA presentation
- The lay summary: PRION 2017 Summary for CJDISA
‘A global collaboration supporting patients, their families and those at increased risk of developing prion disease’.
Presented by Deana Simpson and Suzanne Solvyns, co-chairs, The CJD International Support Alliance (CJDISA).
On July 8-10, 2016, the CJD Foundation and the National Prion Disease Pathology Surveillance Center will host the 2016 CJD Foundation Family Conference at the Washington Court Hotel, Washington, DC. The conference will feature presentations by grant recipients and other researchers, family workshops, roundtable discussions, and updates from the CDC and NPDPSC.
For information, visit www.CJDFoundation.org or go to:
2016 CJD Foundation Family Conference Information
2016 CJD Foundation Family Conference Invitation
2016 CJD Foundation Family Conference Registration Form